New helpers going well. Hot meal every day at lunch ! Plan to try to catch up with pain relief now. Have needed to increase for a while but cos it makes me groggy at first didn't feel safe to leave things to roll. Will try from Weds once I've done the shopping list on Tues. Am relapsing now but enjoyed my remission this summer. Leaves me more hopeful for the future now I know it can happen. Could wish that had had enough help so that could have used my energies for doing other things than just coping here. Well, at least I've been able to sew. That's been lovely. I think I'm pretty burnt out. Just have to chill and get on with the next stage. I'll be able to rest better once the new MP3 player arrives on Thurs. I do love listening to the podcasts of Radio 4 programmes, History Extra and Stuff You Should Know.
Also Our Social Worker made a speech last Tuesday. She
went to the new helper and announced that she was to make sure to be
thoughtful with me, that I may not look it but I am very poorly and to
look after us ! I was all choked up and weepy and that made her weepy
too. She said - I never cry. What a difference it makes when some one is
nice. Like I said to someone else today, it doesn't cost anything but
it's worth diamonds. As it happens this particular helper confided in me
after she has 2 sisters both disabled following Hepatitis B jabs like
Ruth and Joanna too. !!
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